Tuesday 5 April 2011

British Columbia Centre for for study of fibromyalgia and "chronic" Lyme disease

Health officials in British Columbia announced $2 million for a study and new centre that will focus on screening, diagnoses and treatment of patients with fibromyalgia, Lyme disease and chronic fatigue syndrome.
The goal of the study and a new clinic initiated by the Ministry of Health and Provincial Health Services Authority is to accurately diagnose the complicated conditions, and provide treatment and ongoing symptom management to patients.
Ryan Jabs, spokesman for the Health Ministry, said the plan has been in the works for quite some time but was announced now to address recent public concern that the province lacked proper health infrastructure to diagnose and treat patients with chronic illness.
B.C. doctors have been accused of drastically under-diagnosing Lyme disease, in particular, and failing to report the cases that are diagnosed, as required.
In the past many Canadian patients sought treatment for these conditions in the United States, but Jabs said the new centre will educate local doctors on what to look for.
Jabs said it will be a hub for provincial family doctors and will provide an educational component so medical practitioners can accurately recognize and diagnose the chronic conditions.
“There’s considerable debate around the medical community, internationally and locally, on diagnosis and treatment of these types of complex illnesses because there are a lot of symptoms that overlap,” he said.
“They’re rarer conditions and there’s not a centre of expertise. The clinic will help that.”
He said exact details regarding the scope of the study and clinic are in the works, but aren’t expected until the summer. Officials hope to have the study up and running up the fall.
Health Minister Mike de Jong said the additional funds mean B.C. will take a leading role in this area of research.
“I hope that B.C. can help to positively impact patients across the country by studying these illnesses and learning ways to help patients manage their symptoms,” he said in a news release announcing the funding.
Currently, the cause of these debilitating illnesses is unknown, though doctors suspect an infectious agent may play a key role in a patient’s development of chronic diseases.
Recent genome science breakthroughs in DNA sequencing and computer analysis have doctors hoping they’ll have some answers to these complex health issues soon.
About 343,000 Canadians are afflicted with fibromyalgia, a condition that results in chronic pain and stiffness in the muscles and joints, poor sleep and fatigue. Women are approximately 17 per cent more likely than men to develop the illness, according to the federal public health website.
Others with acute Lyme disease were able to be treated with antibiotics to prevent the development of chronic Lyme disease, but in some cases the medication does not prevent the onslaught of the chronic condition.

Reader's comment:
The BC government was under the gun which is why they coughed up the funds. Last year they secretly commissioned a report on how they are managing Lyme disease in BC. Instead of releasing the findings of the report they tried to bury it.
The report, authored by a very senior person in Provincial Health Services Authority, found that contrary to government messaging that blood tests for Lyme disease were poor, doctors were ignorant, there was no treatment for chronic Lyme disease patients, diagnostic methods were inadequate and the true incidence of Lyme disease in BC was unknown.
The BC government sat on the report and recommendations until the report was obtained through a Freedom of Information request and given to the Vancouver Sun. The Sun came out with a very hard hitting story yesterday and now the BC government is trying to show they are on top of the issue.
Lyme disease is a very serious tick-borne infection. Ticks carrying Lyme disease are found throughout southern Canada and throughout most of British Columbia. In the United States over 35,000 cases of Lyme disease are reported annually - mainly in states adjacent to the Canadian border. In Canada we supposedly have just 30, yes, 30, cases of Lyme disease a year. Obviously something is wrong with this picture.

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